Landscape of healthcare transition services in Canada: a multi-method environmental scan | BMC Health Services Research
Gray WN, Schaefer MR, Resmini-Rawlinson A, Wagoner ST. Barriers to transition from pediatric to adult care: a systematic review. J Pediatr Psychol. 2018;43(5):488–502.
Google Scholar
Society for Adolescent Health and Medicine. Transition to adulthood for youth with chronic conditions and special health care needs. J Adolesc Health. 2020;66(5):631–4.
Google Scholar
Jarvis S, Richardson G, Flemming K, Fraser LK. Numbers, characteristics, and medical complexity of children with life-limiting conditions reaching age of transition to adult care in England: a repeated cross-sectional study. NIHR Open Res. 2022;2:27.
Google Scholar
Cohen E, Patel H. Responding to the rising number of children living with complex chronic conditions. Can Med Assoc J. 2014;186(16):1199–200.
Google Scholar
Canadian Association of Paediatric Health Centres (CAPHC), National Transitions Community of Practice. A guideline for transition from paediatric to adult health care for youth with special health care needs: a national approach [Internet]. 2016. https://childhealthbc.ca/sites/default/files/caphc_transition_to_adult_health_care_guideline_may_2017.pdf
Toulany A, Gorter JW, Harrison M. A call for action: recommendations to improve transition to adult care for youth with complex health care needs. Paediatr Child Health. 2022;27(5):297–302.
Google Scholar
MacNeill L, Doucet S, Luke A. Caregiver experiences with transitions from pediatric to adult healthcare for children with complex care needs. Child Care Health Dev. 2022;48(5):800–8.
Google Scholar
Tsang VWL, Fletcher S, Jassemi S, Smith S. Youth, caregiver, and provider perception of the transition from pediatric to adult care for youth with chronic diseases. J Dev Behav Pediatr JDBP. 2022;43(4):197–205.
Google Scholar
Li L, Carter N, Gorter JW, Till L, White M, Strachan PH. Surviving transition: a qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of care. Health Care Transit. 2024;2:100035.
Google Scholar
Siddiqui S, Zimmerman CT, Garza B, Saridey SK, Wiemann CM. Development of a transition program for pediatric patients with renal disease. Health Care Transit. 2023;1:100014.
Google Scholar
Dale CM, King J, Amin R, Katz S, McKim D, Road J, et al. Health transition experiences of Canadian ventilator-assisted adolescents and their family caregivers: a qualitative interview study. Paediatr Child Health. 2017;22(5):277–81.
Google Scholar
Cook K, Siden H, Jack S, Thabane L, Browne G. Up against the system: a case study of young adult perspectives transitioning from pediatric palliative care. Nurs Res Pract. 2013;2013:1–10.
Google Scholar
Franklin MS, Beyer LN, Brotkin SM, Maslow GR, Pollock MD, Docherty SL. Health care transition for adolescent and young adults with intellectual disability: views from the parents. J Pediatr Nurs. 2019;47:148–58.
Google Scholar
Paul M, Street C, Wheeler N, Singh SP. Transition to adult services for young people with mental health needs: a systematic review. Clin Child Psychol Psychiatry. 2015;20(3):436–57.
Google Scholar
Zhou H, Roberts P, Dhaliwal S, Della P. Transitioning adolescent and young adults with chronic disease and/or disabilities from paediatric to adult care services – an integrative review. J Clin Nurs. 2016;25(21–22):3113–30.
Google Scholar
Varty M, Speller-Brown B, Phillips L, Kelly KP. Youths’ experiences of transition from pediatric to adult care: an updated qualitative metasynthesis. J Pediatr Nurs. 2020;55:201–10.
Google Scholar
Dimitropoulos G, Morgan-Maver E, Allemang B, Schraeder K, Scott SD, Pinzon J, et al. Health care stakeholder perspectives regarding the role of a patient navigator during transition to adult care. BMC Health Serv Res. 2019;19(1):390.
Google Scholar
Gabriel P, McManus M, Rogers K, White P. Outcome evidence for structured pediatric to adult health care transition interventions: a systematic review. J Pediatr. 2017;188:263–e26915.
Google Scholar
Foster BJ. Heightened graft failure risk during emerging adulthood and transition to adult care. Pediatr Nephrol. 2015;30(4):567–76.
Google Scholar
Roy S, Valdez AMD, Trejo B, Bakewell T, Gallarde-Kim S, Martin AJ. All circuits ended: Family experiences of transitioning from pediatric to adult healthcare for young adults with medical complexity in Oregon. J Pediatr Nurs. 2022;62:171–6.
Google Scholar
Marquis S, Lunsky Y, McGrail KM, Baumbusch J. Population level administrative data evidence of visits to the emergency department by youth with intellectual/developmental disabilities in BC, Canada. Am J Emerg Med. 2023;69:52–7.
Google Scholar
Zhao X, Bjerre LM, Nguyen GC, Mack DR, Manuel DG, Hawken S, et al. Health services Use during Transition from Pediatric to Adult Care for Inflammatory Bowel Disease: a Population-based study using Health Administrative Data. J Pediatr. 2018;203:280–e2874.
Google Scholar
Shulman R, Shah BR, Fu L, Chafe R, Guttmann A. Diabetes transition care and adverse events: a population-based cohort study in Ontario, Canada. Diabet Med J Br Diabet Assoc. 2018;35(11):1515–22.
Google Scholar
Heery E, Sheehan AM, While AE, Coyne I. Experiences and outcomes of transition from Pediatric to Adult Health Care Services for Young people with congenital heart disease: a systematic review. Congenit Heart Dis. 2015;10(5):413–27.
Google Scholar
Li L, Polanski A, Lim A, Strachan PH. Transition to adult care for youth with medical complexity: assessing needs and setting priorities for a health care improvement initiative. J Pediatr Nurs. 2022;62:144–54.
Google Scholar
Teed M, Bekx A, Paul M, Younker L. Health care transition for children with medical complexity: challenges and lessons learned. J Pediatr Nurs. 2021;61:275–9.
Google Scholar
Children’s Healthcare Canada. Transition to Adult Care Hub [Internet]. 2023 [cited 2023 Dec 18]. https://www.childrenshealthcarecanada.ca/en/networks-and-hubs/transition-to-adult-care-hub.aspx
Campbell F, Biggs K, Aldiss SK, O’Neill PM, Clowes M, McDonagh J, et al. Transition of care for adolescents from paediatric services to adult health services. Cochrane Database Syst Rev. 2016;4:CD009794.
Google Scholar
Betz CL, O’Kane LS, Nehring WM, Lobo ML. Systematic review: health care transition practice service models. Nurs Outlook. 2016;64(3):229–43.
Google Scholar
Chu PY, Maslow GR, von Isenburg M, Chung RJ. Systematic review of the impact of transition interventions for adolescents with chronic illness on transfer from pediatric to adult healthcare. J Pediatr Nurs. 2015;30(5):e19–27.
Google Scholar
Schmidt A, Ilango SM, McManus MA, Rogers KK, White PH. Outcomes of pediatric to adult health care transition interventions: an updated systematic review. J Pediatr Nurs. 2020;51:92–107.
Google Scholar
Fegran L, Hall EOC, Uhrenfeldt L, Aagaard H, Ludvigsen MS. Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: a qualitative metasynthesis. Int J Nurs Stud. 2014;51(1):123–35.
Google Scholar
Splane J, Doucet S, Luke A. Transitioning from paediatric to adult healthcare: exploring the practices and experiences of care providers. J of Child Health Care. 2023. https://doi.org/10.1177/13674935231202870
The Oxford Handbook of Multimethod and Mixed Methods Research Inquiry [Internet]. Oxford University Press. 2015 [cited 2023 Dec 22]. https://academic.oup.com/edited-volume/34493
Sandelowski M. What’s in a name? Qualitative description revisited. Res Nurs Health. 2010;33(1):77–84.
Google Scholar
Bradshaw C, Atkinson S, Doody O. Employing a qualitative description approach in health care research. Glob Qual Nurs Res. 2017;4:2333393617742282.
Google Scholar
Sandelowski M. Whatever happened to qualitative description? Res Nurs Health. 2000;23(4):334–40.
Google Scholar
Sandelowski M. Sample size in qualitative research. Res Nurs Health. 1995;18(2):179–83.
Google Scholar
Gale NK, Heath G, Cameron E, Rashid S, Redwood S. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 2013;13(1):117.
Google Scholar
Betz CL, Ferris ME, Woodward JF, Okumura MJ, Jan S, Wood DL. The Health Care Transition Research Consortium Health Care Transition model: a framework for research and practice. J Pediatr Rehabil Med. 2014;7(1):3–15.
Google Scholar
Klassen AF, Grant C, Barr R, Brill H, Kraus de Camargo O, Ronen GM, et al. Development and validation of a generic scale for use in transition programmes to measure self-management skills in adolescents with chronic health conditions: the TRANSITION-Q. Child Care Health Dev. 2015;41(4):547–58.
Google Scholar
Moynihan M, Saewyc E, Whitehouse S, Paone M, McPherson G. Assessing readiness for transition from paediatric to adult health care: revision and psychometric evaluation of the Am I ON TRAC for Adult Care questionnaire. J Adv Nurs. 2015;71(6):1324–35.
Google Scholar
Grant C, Pan J. A comparison of five transition programmes for youth with chronic illness in Canada. Child Care Health Dev. 2011;37(6):815–20.
Google Scholar
White PH, Cooley WC, Transitions Clinical Report Authoring Group, American Academy of Pediatrics, American Academy of Family Physicians. American College of Physicians. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2018;142(5):e20182587.
Google Scholar
Ziemann M, Salsberg E, McManus M, White P, Schmidt A. Strengthening the adult primary care workforce to support young adults with medical complexity transitioning to adult health care [Internet]. Washington, DC: Fitzhugh Mullan Institute for Health Workforce Equity, George Washington University; 2023 [cited 2023 Dec 8]. https://gottransition.org/resource/?strengthening-adult-primary-care-workforce-medical-complexity-hct
Coller RJ, Berry JG, Kuo DZ, Kuhlthau K, Chung PJ, Perrin JM, et al. Health System Research Priorities for Children and Youth with Special Health Care needs. Pediatrics. 2020;145(3):e20190673.
Google Scholar
Lindsay S, Hoffman A. A complex transition: lessons learned as three young adults with complex care needs transition from an inpatient paediatric hospital to adult community residences. Child Care Health Dev. 2015;41(3):397–407.
Google Scholar
Voorheis P, Wilson M, Scallan E. Rapid synthesis: identifying features of novel approaches to supporting transitions from child to adult care for young people with special healthcare needs in Canada. Hamilton: McMaster Health Forum; 2020 Mar.
Beal SJ, Riddle IK, Kichler JC, Duncan A, Houchen A, Casnellie L, et al. The associations of chronic condition type and individual characteristics with transition readiness. Acad Pediatr. 2016;16(7):660–7.
Google Scholar
Singh SP, Paul M, Ford T, Kramer T, Weaver T, McLaren S, et al. Process, outcome and experience of transition from child to adult mental healthcare: multiperspective study. Br J Psychiatry. 2010;197(4):305–12.
Google Scholar
Vaks Y, Bensen R, Steidtmann D, Wang TD, Platchek TS, Zulman DM, et al. Better Health, less spending: redesigning the Transition from Pediatric to Adult Healthcare for Youth with Chronic Illness. Healthc Amst Neth. 2016;4(1):57–68.
Google Scholar
Ontario Health. Transitions from youth to adult health care services [Internet]. Toronto, ON: Ontario Health. 2022. https://www.hqontario.ca/Portals/0/documents/evidence/quality-standards/qs-transitions-from-youth-to-adult-health-care-services-quality-standard-en.pdf
Singh SP, Tuomainen H. Transition from child to adult mental health services: needs, barriers, experiences and new models of care. World Psychiatry. 2015;14(3):358–61.
Google Scholar
Doucet S, Splane J, Luke A, Asher KE, Breneol S, Pidduck J, et al. Programmes to support paediatric to adult healthcare transitions for youth with complex care needs and their families: a scoping review. Child Care Health Dev. 2022;48(5):659–92.
Google Scholar
Gorter JW, Stewart D, Woodbury-Smith M. Youth in transition: care, health and development. Child Care Health Dev. 2011;37(6):757–63.
Google Scholar
Judson TJ, Volpp KG, Detsky AS. Harnessing the right combination of extrinsic and intrinsic motivation to Change Physician Behavior. JAMA. 2015;314(21):2233–4.
Google Scholar
Nguyen L, Dawe-McCord C, Frost M, Arafeh M, Chambers K, Arafeh D et al. A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada. Front Rehabil Sci [Internet]. 2023 [cited 2023 Dec 22];4. https://www.frontiersin.org/articles/https://doi.org/10.3389/fresc.2023.1305084
Hardin AP, Hackell JM, Committee on Practice and Ambulatory Medicine, Simon GR, Boudreau ADA, Baker CN, et al. Age limit of pediatrics. Pediatrics. 2017;140(3):e20172151.
Google Scholar
Fair C, Cuttance J, Sharma N, Maslow G, Wiener L, Betz C, et al. International and interdisciplinary identification of health care transition outcomes. JAMA Pediatr. 2016;170(3):205.
Google Scholar
Bailey K, Lee S, de Los Reyes T, Lo L, Cleverley K, Pidduck J, et al. Quality indicators for youth transitioning to adult care: a systematic review. Pediatrics. 2022;150(1):e2021055033.
Google Scholar
Flodgren G, Eccles MP, Shepperd S, Scott A, Parmelli E, Beyer FR. An overview of reviews evaluating the effectiveness of financial incentives in changing healthcare professional behaviours and patient outcomes. Cochrane Database Syst Rev [Internet]. 2011 [cited 2023 Dec 22];(7).
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